Visit our USA website
David was diagnosed with Alzheimer’s in 2016 after experiencing problems with his memory. Below he shares his story about joining the Clarity clinical trial at Re:Cognition Health, testing Lecanemab:
When did you join the study at Re:Cognition Health?
I joined in June 2020
Why did you decide to participate in a trial?
To help the research into the disease and to give me a purpose in a situation with no hope.
How do you think the trial has been beneficial to you?
From the very beginning I felt that I was receiving expert advice and attention. I believe that Lecanemab has slowed the progress of the disease and allowed me to continue to live as normal life as possible.
How did you find out about the trials?
After receiving the diagnosis, although not clinically confirmed, my wife began researching the disease and contacted a company offering clinical trials, who unfortunately turned me down as I suffer from test anxiety and scored really badly in the MMSE test. Re:Cognition Health contacted me as I had registered with Dementia Research and they approached the situation with a more intelligent and supportive attitude.
“Re:Cognition Health has been my salvation. The wonderful care and attention has been beyond expectation”
How has your clinical trials journey been?
The clinical trial has given both my wife and I, hope and purpose. After 4 years and 108 infusions of Lecanemab I feel privileged to have access to a ground breaking treatment. It has been an enormous commitment and not always easy but I don’t have any regrets.
How has your experience with Re:Cognition Health been?
Re:Cognition Health has been my salvation. The wonderful care and attention has been beyond expectation. Dr MacSweeney has personally been involved in my health care, for example I was taken to A&E with a suspected heart attack and Dr MacSweeney spoke to the doctor on a Sunday morning to ensure that I was not given any treatment that might be a risk to me. Nothing has ever been too much trouble.
What were your expectations?
When I decided to volunteer I had no expectation that there would be any success with the planned drug and understood that there was a risk being involved in a trial.
What advice would you give anybody in a similar position?
If you are eligible for any of the drugs being trialled then you should consider yourself extremely fortunate and I would wholeheartedly encourage you to pursue. Not only for yourself but for future generations.
Anything additional to add?
Just my heartfelt thanks for accepting me and giving me hope.
To find out more about how you can access new medications for Alzheimer’s, learn more about our services here.
